Record Details
“People are all about appearances”: A focus group of teenagers with Moebius Syndrome
ScholarsArchive at Oregon State University
| Field | Value |
|---|---|
| Title | “People are all about appearances”: A focus group of teenagers with Moebius Syndrome |
| Names |
Bogart, Kathleen R.
(creator) |
| Date Issued | 2014-01-14 (iso8601) |
| Note | This is an author's peer-reviewed final manuscript, as accepted by the publisher. The published article is copyrighted by Sage Publications and can be found at: http://hpq.sagepub.com/. |
| Abstract | This focus group study examined the social experiences of 10 adolescents ages 12-17 with Moebius Syndrome, a rare condition involving congenital facial paralysis. Content analysis revealed five themes: social engagement/disengagement; resilience/sensitivity; social support/stigma; being understood/misunderstood; and public awareness/lack of awareness of Moebius Syndrome. Compared to previous research on adults with Moebius Syndrome, adolescents were more likely to experience bullying and social strain. Like adults, teenagers displayed resilience and communication skills. Greater public awareness is key to reducing the stigma associated with this condition, and social skills programs should be developed to support those who struggle with social functioning. |
| Genre | Article |
| Topic | Moebius Syndrome |
| Identifier | Bogart, K. R. (2014). “People are all about appearances”: A focus group of teenagers with Moebius Syndrome. Journal of Health Psychology, [Article in Press]. doi:10.1177/1359105313517277 |
